Brooke Taylor Reynolds – Brookie, to those that know and love her – is a beautiful 4 year old little girl from Rhode Island with a smile that will capture your heart. Like many little girls her age, she loves to laugh, play with her dolls and be around her many little friends.
She idolizes her older brother, Tyler, and she has a spirit that is contagious. But Brookie is different than most children. She has spastic quadriplegia, a form of cerebral palsy (CP), in which all four limbs are affected. At 9 months old she was diagnosed with what is characterized to be one of the more severe forms of cerebral palsy, as it presents in the loss of both motor and sensory functions in both legs and both arms.
Brookie’s speech and physical development are severely delayed. She faces challenges on a daily basis to accomplish tasks that most parents and children take for granted. To help loosen the stiffness of her muscles, Brookie receives various rounds of therapies over the course of every month. She has physical therapy and occupational therapy twice weekly, horse therapy (hippotherapy) and swim therapy.
Brookie also receives private speech therapy and anat baniel therapy 2-3 times weekly that insurance doesn’t cover. Private speech is $110 per 45 min and anat baniel therapy is $85-100 per 45 min lessons. > Every day Brookie is required to wear special braces on legs so her feet don’t lose range of motion. Yet through it all, she is as delightful as can be and always has a smile on her face. Her mothers motto is, “Impossible is nothing!” This page was created by friends of the Reynolds family in hopes of supporting them through their ongoing journey.
Allison, Dan, Tyler and Brookie are an incredibly strong and inspirational family and we want to do everything we can to show them how much they are loved and supported. Brookie will have challenges ahead but with our ongoing help, hopefully she can have access to resources and treatments that will assist in improving her development and let her live the best life possible. In addition to continuing all of her therapies, Brookie now has a power chair and she would love to be able to use this in the house.
They have had people come and a ramp is not feasible on their property so the only option is a wheelchair lift costing $10,100 and their porch will need to be changed also which is an estimate of $5000. They would like to be able to get a handicap accessible van which is around $45,000. Next year with Brookie bring in K and needing to be picked up early for therapies a van is now becoming a necessity. Sadly everything is beyond expensive to just get what Brookie needs to live a normal life as possible.
In her mothers words: “Brookie truly is the happiest little person alive. She doesn’t let anything stop her. People always say her eyes sparkle and her smile will make anybody’s heart shine”. We know that your support will keep her smiling for years and years to come. Impossible is nothing!!
On April 1, 2011, it was official: 2 ½-year-old Malia Dakota Jusczyk’s carefree life of Disney World and pony rides, soccer practice and swimming pools, came to a grinding halt. A CT scan revealed that Malia’s recent “tummy aches” were caused by a large tumor lodged in her abdomen. The solid mass wrapped around major blood vessels and pushed against her kidney and aorta.
A biopsy confirmed that Malia has a very aggressive childhood cancer known as stage IV (high risk) neuroblastoma. The cancer had metastasized into her bones and bone marrow (cranium, humerus, and femur). Immediately after the debilitating diagnosis, Malia’s parents, Megan and Glen, left Orlando, Florida in order to provide their daughter with the best treatment currently available to her at the Children’s Hospital/Dana-Farber Jimmy Fund Clinic in Boston, Massachusetts.
To survive, Malia’s little body had to endure six rounds of chemo, nine hours of tumor resection surgery, a stem cell transplant, removal of a kidney and an adrenal gland, twelve rounds of proton radiation, countless blood transfusions, and immunotherapy.
We are thrilled to share that as of July 2012, Malia has been declared NED (No Evidence of Disease). Yay!! However, since the rate of relapse with neuroblastoma is so high (and since there is no cure once a child relapses), we have entered her in a two-year-long remission trial, which utilizes a medication called DFMO 2/day and includes scans every three months as well as monthly oncology appointments.
Malia, like all children diagnosed with this awful disease, has shown an unbelievable strength and willpower throughout her treatment. We are thankful for every single day we get with our beautiful daughter!
Unfortunately, many parents can’t say the same. The fact remains that every sixteen hours a child dies from neuroblastoma, and although cancer is the number one disease killer of our children, only 3.8% of cancer research funding goes toward pediatric cancer. That is why we have chosen to expand the non-profit, For Kidsâ€™ Sake (created by Malia’s dad, Glen Jusczyk), to raise money for neuroblastoma research as well as for families of children diagnosed with neuroblastoma.
According to the Neuroblastoma Children’s Cancer Society: “For families affected by neuroblastoma, the medical costs alone typically exceed $500,000 with many costs not covered by health insurance, this experience can devastate a family financially.”
Please consider donating to this very worthy cause and helping more children crush cancer!